Organization

The steering committee of a national quality register holds overall responsibility for the registry’s direction, quality, and long-term development. It makes decisions on strategic matters, priorities, and significant changes to the register. The committee follows up on objectives, indicators, data quality, and how registry data are used. It ensures that ethical, legal, and information security requirements are met. Typically, the committee consists of clinical representatives and other key experts. It offers guidance and oversight to the operational management of the registry.

Riksstroke is led by a nationally composed steering committee consisting of a chairman (register holder) and an interdisciplinary group, including a representative of the patient organization. The steering comitte must also stimulate and/or carry out research based on National Stroke Data. Riksstroke is organized under Registercentrum Norr, Region Västerbotten. Most of Riksstroke’s practical work is carried out by an office located at Norrland University Hospital. The business must be designed to meet the requirements of a national quality register.

Head manager

Mia Von Euler, Professor, Vice-Chancellor, Sopiahemmet Högskola Stockholm

e-mail:mia.voneuler@shh.se

Scientific coordinator

Marie Eriksson, Department of Statistics, Umeå University
e-mail: marie.eriksson@umu.se

National coordinator

Sara Korpela, Registercentrum Norr, Department of Reasearch and Developement, University Hospital of Umeå
e-mail: sara.korpela@regionvasterbotten.se

Register statistician

Statistician at Registercentrum Norr, Department of Reasearch and Developement, University Hospital of Umeå
e-mail: datauttag.rcnorr@regionvasterbotten.se

Principal organizer

County Council of Västerbotten, Umeå, Sweden. Owner and legally responsible for the national database.

Informants

Participating departments in acute stroke care.